Full of Life All Ages (RBKC)
Full of Life is an independent self-help group managed by parents of children with disabilities in Kensington and Chelsea.
Full of Life offers free practical independent advice to parent carers through direct services.
This consists of bi-monthly parent forums, a family support service, advocacy for adult services, an Information Service and a Parent Partnership Service which deals with anything to do with special educational needs.
Full of Life also runs a centre for young adults with complex needs, operating 6 days a week with a focus on communication and personal development, new experiences and learning new skills.
For more information about Full of Life’s services click here
You can contact Full of Life by sending us a message here or via our details below on:
Full of Life, Kensal House Annex, 379 ladbroke Grove, London W10 5BQ
Tel: 05601 535 446 or 0208 962 9994
Children With Disabilities Team 0-18 (RBKC)
Services are available to Royal Borough of Kensington and Chelsea (RBKC) residents who have a child aged 0 to 18 with a disability who is substantially affected in their everyday living by one or more of the following:
- Global developmental delay
- Physical impairment
- A profound sensory impairment
- A significantly disabling chronic ill health condition
- Severe communication or language disorder
- Autistic Spectrum Disorder with communication disorder and developmental delay
- Learning disability
- A serious life limiting or terminal illness
The team provides a full range of statutory social care services for disabled children, including child protection and looked after children in accordance with the Children Act 1989The services provided are aimed towards normalising their lives and enabling them to do what other, non-disabled children can do without support and include:
- St Quintin Centre for Disabled Children and Young People
- One-to-one support at home
- After school club and/or holiday play scheme
- Saturday Care scheme
- Residential short breaks
- Direct Payment Scheme
- The Haven
You can contact the Children with Disabilities Team directly. Referrals to the team can be made by young people, parents, carers and professionals. The initial way to contact us is through our duty social worker who is available on 0207 598 4921 (9am to 5pm).
- Contact details
- Keyworkers (a service for children aged 0-7years) based at St Quintins 020 8968 2570
- Duty Social Workers: 020 7598 4921
- Senior Social Workers, Jowita Poniewska 020 7598 4926
- Team Manager, Dawn Saunders 020 7598 4924
Behaviour and Family Support Team (5-18) RBKC
The behaviour and family support team provide assessments, intervention work, consultations, support, counseling and practical advice for children with moderate to severe learning disabilities who have emotional, behavioural, mental health problems or complex needs. These services are also offered to their families and carers. The team also works with the Children with Disabilities Team. The team includes a consultant clinical psychologist, assistant psychologists, speech and language therapist and an occupational therapist. They can provide the following support:
- Behavioral management advice
- Family therapy
- Speech and language therapy
- Occupational therapy
- Counseling and support
- Liaison and consultation with other services involved
- Development of a care package
The service is mainly aimed at children between the ages of 5-18 however, if you feel your child, may require help in this area, please contact the team to discuss both you and your child's need. You can contact the team directly, by referral or through a professional
Behaviour and Family Support Team
The Town Hall, Hornton Street, London W8 7NX.
Citizen Advice Bureau (National)
The Citizens Advice service provides free, independent, confidential and impartial advice to everyone on their rights and responsibilities. It values diversity, promotes equality and challenges discrimination.
Kensington Citizens Advice Bureau
Many bureaux now have a short introductory interview to help decide how you can be best advised. You may then be asked to make an appointment. If the bureau is open only for appointments or specialist advice this will be indicated in the notes.
Advice Sessions: Monday to Friday: 10am - 4pm.
Telephone Advice Times: Monday to Friday: 11.30am – 2.pm
140 Ladbroke Grove
Telephone: 0844 826 9708
Chelsea Citizen Advice Bureau
Old Town Hall, Kings Road, London SW3 5EE
Tel: 0844 826 9708 Visiting the Bureau
Mon, Wed - Fri: 10.00 - 12.30
Clients are seen at the 'open door', on first come first served basis. Tickets issued are restricted
Tue: 10.00 - 12.30
Pre-booked appointments only.
Telephone advice times: Mon - Fri : 11.30 - 16.00
Family Friends (0-16) (RBKC, LBHF)
Family Friends is a registered charity set up in 1993 to support disadvantaged families. Through a network of trained volunteers they provide befriending and mentoring services.
Family Friends carefully recruits, trains and matches volunteers with parents, children or adolescents. Volunteers meet the family in their home, once a week for two hours. They offer long-term practical and emotional help based on each family's unique needs and potential. Volunteers pledge a year's commitment and Family Friends' staff back up their work with on-going supervision and family feedback interviews.
Contact a family (National)
Contact a Family provides national support, advice and information for families with disabled children. Currently there are no local branches for Kensington and Chelsea however, there are some good national services which are listed below:
Contact a Family's freephone helpline for parents and professionals across the UK is staffed by trained parent advisors. It gives information and advice on a wide range of issues including welfare rights, education, short breaks, local services and local support. Free phone helpline 0808 808 3555 (Mon-Fri, 10am-4pm; Mon, 5.30-7.30pm) or Textphone 0808 808 3556
Contact a Family has a resource library which includes newsletters, parent guides and research reports, helping parents and professionals to stay informed. Please see their website, details below.
The organisation produce the Contact a Family Directory - the essential guide to medical conditions and disabilities with information on over 1000 conditions and related support. Each entry provides an overview of the condition with details of support groups where available. Please see their website, and click medical information.
Contact a Family (Main London Office)
209-211 City Road,
London EC1V 1JN
Tel: 020 7608 8700
Fax: 020 7608 8701
Website: www.cafamily.org.uk Freephone Helpline 0808 808 3555 or Textphone 0808 808 3556 Freephone for parents and families (Mon-Fri, 10am-4pm; Mon, 5.30-7.30pm)
IPSEA is a national charity providing legally based independent advice to families who have children with special educational needs. All advice is given by trained volunteers.
General Advice Line
The General Advice Line can help deal with problems with schools, requesting statutory assessment, proposed statements, annual reviews, possible disability discrimination and exclusions from school. Tel: 0800 018 4016
Tribunal Help Line
The Tribunal Help Line offers next-step advice on SEN appeals and disability discrimination claims to the Special Educational Needs and Disability Tribunal. When you call they will assess whether you need casework support. Tel: 0845 602 9579
National Autistic Society - www.autism.org.uk
The National Autistic Society (NAS) is a charity for people affected by autism. Today they have over 18,000 members, 80 branches and provide a wide range of services throughout the UK. The Ladbrooke Grove Austism Centre is their local branch for the Kensington and Chelsea area. NAS also provide some national services including:
For confidential information, advice and advocacy for people with an autism spectrum disorder and their families. Contact: 0808 800 4104 (Mon-Fri, 10am - 4pm). Minicom: 0845 070 4003 Email: firstname.lastname@example.org Telephone interpretation service available
Parent to Parent Service
This service provides parents with the opportunity to speak to other parents who have a child on the autism spectrum. All volunteers are professionally trained and they all have personal experience of autism and want to do something to support others in a similar situation. Contact them for free (on landline and most mobile tariffs) 0808 800 4106.
Education Rights Service
The Education Rights Service provides impartial, confidential information, advice and support on education rights and entitlements for parents and carers of pre-school and school-age children with autism to help them get the educational support their child needs.
This telephone service also offers specific telephone support and advice to those preparing for tribunal. The Helpline is: 0808 800 4102
Action for Blind People (National)
Action for Blind People is a national charity that provides free and confidential support for blind and partially sighted people in all aspects of their lives.
The team also has a number of specialists who provide outreach advice on employment, welfare rights and assistive technology.
You can contact North London team on
Tel: 020 7635 4800
Royal National Institute of Blind People (RNIB)
The Royal National Institute of Blind People (RNIB) is a national leading charity offering information, support and advice to over two million people with sight loss. Their work helps anyone with a sight problem - not just with braille and Talking Books, but with imaginative and practical solutions to everyday challenges. People are still losing their sight unnecessarily. Their campaigns include the ability to eliminate avoidable sight loss and support research into the causes and latest treatments of eye conditions.
Afasic is a UK charity for children and young people with speech, language and communication difficulties, working for their inclusion in society and supporting their parents and carers. Their Advice and Information Services provide support to thousands of people every year, including free Helpline and email support, free to download factsheets and access to their local networks.
For more information:
20 Bowling Green Lane
London EC1R 0BD
Helpline: 0300 666 9410