Full of Life http://www.fulloflifekc.com Parents supoprt group for children with disabilities and their families in Kensington and Chelsea Wed, 01 Feb 2012 22:33:22 +0000 en hourly 1 http://wordpress.org/?v=3.2.1 My Rights, Your Responsibilityhttp://www.fulloflifekc.com/2011/12/my-rights-your-responsibility/ http://www.fulloflifekc.com/2011/12/my-rights-your-responsibility/#comments Thu, 08 Dec 2011 18:12:42 +0000 information http://www.fulloflifekc.com/?p=1996 The Council for Disabled Children has published some helpful information for parents and carers of disabled childern on their child’s rights to access activities, community facilities and other services.

Topics include:

  • Behaviour management
  • Epilepsy
  • Invasive care
  • Sensory impairments
  • Moving & handling
  • Transport
  • Personal care
  • Communication

You can also download 6 leaflets on the following areas:

  • Children’s rights to communicate their views and be listened to
  • Choosing a service for your child
  • Expectations
  • The Equality Act
  • What is risk?
  • What services need to know – a leaflet aimed at service providers
To Get Informed, click here!
]]> http://www.fulloflifekc.com/2011/12/my-rights-your-responsibility/feed/ 0 Follow and ‘Like’ IPSEA on facebookhttp://www.fulloflifekc.com/2011/12/follow-and-like-ipsea-on-facebook/ http://www.fulloflifekc.com/2011/12/follow-and-like-ipsea-on-facebook/#comments Thu, 08 Dec 2011 15:58:31 +0000 information http://www.fulloflifekc.com/?p=1992 IPSEA has now launched a vibrant and informative facebook page. Click the link below and click the ‘like’ button to stay up to date in all areas of special education needs and the law.

Click here http://www.facebook.com/ipsea.page

IPSEA is a registered charity offering free and independent advice to parents of children with special educational needs in England and Wales on:

  • local authorities’ legal duties to assess and provide for children with special educational needs
  • exclusions of children with special needs/disabilities
  • actions or inaction by local authorities and/or schools which discriminate against children with disabilities.

For more info on IPSEA, click here.

]]> http://www.fulloflifekc.com/2011/12/follow-and-like-ipsea-on-facebook/feed/ 0 Government maintains mobility allowance for people in residential carehttp://www.fulloflifekc.com/2011/12/government-maintains-mobility-allowance-for-people-in-residential-care/ http://www.fulloflifekc.com/2011/12/government-maintains-mobility-allowance-for-people-in-residential-care/#comments Thu, 08 Dec 2011 15:05:58 +0000 information http://www.fulloflifekc.com/?p=1989

Message from Leonard Cheshire Disability:

 

After more than a year of hard work, meeting MPs, writing thousands of letters to the Minister, talking to the press and supporting the Hardest Hit protests, you’ve done it! The mobility component of Disability Living Allowance (and the benefit that will replace it, Personal Independence Payment) will not be removed from people in residential care!

The action you and thousands of campaigners have taken means that the Government has listened to disabled people and decided not to take away mobility payments.

This decision will be a huge relief to thousands of disabled people worried that without their mobility allowance they would have been trapped in their homes.

Find out more about how you changed the Government’s mind at www.lcdisability.org/dla

Best wishes (and well done!),

Hannah & the Campaigns Team

To find out more about Leonard Cheshire Disability, click here.

]]> http://www.fulloflifekc.com/2011/12/government-maintains-mobility-allowance-for-people-in-residential-care/feed/ 0 Christmas Carols for Full of Life – 15th Dechttp://www.fulloflifekc.com/2011/12/christmas-carols-for-full-of-life-15th-dec/ http://www.fulloflifekc.com/2011/12/christmas-carols-for-full-of-life-15th-dec/#comments Thu, 08 Dec 2011 14:10:30 +0000 information http://www.fulloflifekc.com/?p=1987 Ros (who worked with Full of Life as our Family Support Worker and Counsellor) and The Choir of St Phillips Church, Earls Court Road will sing Carols in Kensington High Street Tube Station, in aid of Full of Life on Thursday 15th December from 6pm.  It would be great if some of you could be part of the collection team or if you are simply passing by, please support us.

]]> http://www.fulloflifekc.com/2011/12/christmas-carols-for-full-of-life-15th-dec/feed/ 0 Did you know that retailers will donate to Full of Life when you purchase online.http://www.fulloflifekc.com/2011/12/did-you-know-that-retailers-will-donate-to-full-of-life-when-you-purchase-online/ http://www.fulloflifekc.com/2011/12/did-you-know-that-retailers-will-donate-to-full-of-life-when-you-purchase-online/#comments Wed, 07 Dec 2011 11:27:51 +0000 information http://www.fulloflifekc.com/?p=1983 If you are shopping online please click here. From this link, find the retailer you want to use and shop as normal. When you are finished the retailer will make a donation to Full of Life. Please use the above link at all times when shopping online as this links the retailer to Full of Life.

For all those donating to Full of Life using the above link a massive thank you and a very happy christmas from all at Full of Life.

]]> http://www.fulloflifekc.com/2011/12/did-you-know-that-retailers-will-donate-to-full-of-life-when-you-purchase-online/feed/ 0 Full of Life’s AGMhttp://www.fulloflifekc.com/2011/11/full-of-lifes-agm/ http://www.fulloflifekc.com/2011/11/full-of-lifes-agm/#comments Mon, 07 Nov 2011 17:28:53 +0000 information http://www.fulloflifekc.com/?p=1958 The Full of Life’s Annual General Meeting will take place on Tuesday 15th November 2011, at 11:30am at 3 Exmoor St, London W10 6BE.

Tea, coffee and lunch will be provided; for catering purposes please let us know if you will be attending, by clicking here or calling the office on 020 8962 9994.

Click here to download the invitation and agenda.

For any additional information, click here to contact us.

We hope you can attend!

 

Full of Life

Date: Tuesday 15th Novmember 2011
Time: 11:30am
Address: 3 Exmoor St, London W10 6BE.

]]> http://www.fulloflifekc.com/2011/11/full-of-lifes-agm/feed/ 0 Challenging a refusal to assess your disabled child for specialist serviceshttp://www.fulloflifekc.com/2011/10/challenging-a-refusal-to-assess-your-disabled-child-for-specialist-services/ http://www.fulloflifekc.com/2011/10/challenging-a-refusal-to-assess-your-disabled-child-for-specialist-services/#comments Tue, 18 Oct 2011 10:52:55 +0000 information http://www.fulloflifekc.com/?p=1930 Every Disabled Child Matters (EDCM), have created a powerful document and letter on how to challenge the local authority if they refuse to assess your disabled child for specailist services. This a MUST read for all parents and carers. The document also comes with a MS Word document letter to send to your local authority with exact wording on how to challenge their refusal. If you are already happy with the services you recieve, please share this with your friends and help them get the help their family deserves.

Challenging a refusal to assess – leaflet and letter

For more information and support contact Full of Life.

]]> http://www.fulloflifekc.com/2011/10/challenging-a-refusal-to-assess-your-disabled-child-for-specialist-services/feed/ 0 Housing Informationhttp://www.fulloflifekc.com/2011/10/housing-information/ http://www.fulloflifekc.com/2011/10/housing-information/#comments Tue, 18 Oct 2011 10:52:17 +0000 information http://www.fulloflifekc.com/?p=1933 We have noticed an increase in the number of queries invloving housing and have been working actively and successfully in getting parents the help they need. If you need any additional support for you and your family, you can contact the Information Service, click here.

There has been a number of changes of who to contact within the local authority, see below for the current contact list.

Who to contact within Housing

]]> http://www.fulloflifekc.com/2011/10/housing-information/feed/ 0 Help a local service continue to provide serviceshttp://www.fulloflifekc.com/2011/10/help-a-local-service-continue-to-provide-services/ http://www.fulloflifekc.com/2011/10/help-a-local-service-continue-to-provide-services/#comments Tue, 18 Oct 2011 10:51:43 +0000 information http://www.fulloflifekc.com/?p=1939 Westway helps 1264 people who cannot access public transport due to age or disability stay independent for longer by offering car journeys at heavily subsidised rates. It relies on 4 vehicles driven by 22 volunteers who provide over 200 weekly trips

NatWest CommunityForce is donating £6,000 to the project with the most votes. Please click the link below where you can vote for them to be nominated to receive this grant. £6,000. The money would be used towards the replacement of an old vehicle for the Car Scheme. This would enable them continue to provide continue to provide 50 journeys every week that would be lost if they were unable to replace the vehicle. Whilst these journeys are not a matter of life and death, they are still of the uppermost importance for clients as they are often the only chance they have during the week to go out, to meet friends and family or attend classes to keep their bodies or their minds agile.

Click here to vote

The whole process will take around 5 mins.

for more information Westway, contact

Tracey Heap
Westway Community Transport
240 Acklam Road
London
W10 5YG

email:traceyheap@westwayct.org.uk
web: www.westwayct.org.uk
Tel 020 8964 4928
Fax 020 8969 5733


]]> http://www.fulloflifekc.com/2011/10/help-a-local-service-continue-to-provide-services/feed/ 0 Makaton Coffee Mornings at St Quintinshttp://www.fulloflifekc.com/2011/10/makaton-coffee-mornings-at-st-quintins/ http://www.fulloflifekc.com/2011/10/makaton-coffee-mornings-at-st-quintins/#comments Tue, 18 Oct 2011 10:50:16 +0000 information http://www.fulloflifekc.com/?p=1936 St Quintins will be holding Makaton Coffee Mornings on the 20th Oct, 24th Nov and 15th Dec from 11am-12pm. Come and learn some makaton signing or refresh some of your learnt skills. Children welcome to come and join in.

Makaton Coffee Mornings

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