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First Steps for Help

If you think your child has additional needs, a disability or special educational needs, you may need support from a health professional. This could include a paediatrician, neurologist, occupational therapist, physiotherapist or speech and language therapist. Some of these professionals work from community based clinics, children centres and schools.

If your child has been diagnosed with a disability or special educational needs, then it is important for you to request a Needs Assessment and a Care Plan. A Care Plan enables families to access the support services they need. This can include short breaks, home help, holidays, equipment and adaptations. In order to access a Care Plan you will have a Needs Assessment. In Kensington and Chelsea, this is usually carried out by the Children with Disabilities Team (CWDT) if you meet their criteria. This assessment will look at the needs of your child and family. It is at this point you need to ask what support is available or discuss what support you think you may need. Once you have an agreed Care Plan that best suits your family, you will then have a yearly review to see if your needs have changed.

Full of Life · A self-help group managed by parents of children with disabilities

Also make sure you request a Carer’s Assessment, which you are entitled to under the Carers (Recognition and Services) Act 1995. This will help inform social services about how caring impacts on your life. For more information about the Carer’s Assessment please click here.

Please remember that you and your family have a right to have a re-assessment at any time throughout the year if your child’s needs change. For more information about the role of social services and the Care Plan please click here.

For more information and support contact the Full of Life Family Support Service (0-14) RBKC

Family Support Service offers independent advice and information on the following:

  • Benefits, such as Disability Living Allowance and Carers Allowance.
  • Issues relating to Housing, Health and Social Services.
  • Preparation for meetings.
  • Support with complaints.
  • Liaising with various Statutory Departments that support families such as Social Service and Health.

Full of Life
Kensal House Annex
379 Ladbroke Grove
London
W10 5BQ

Tel: 0208 962 9994 / familysupport@fulloflifekc.com

Additional Support for Under 5’s

The Medical Centre Woodfield Road provides a range of children’s services including health visiting, children’s nursing, speech and language therapy and school nursing. For more information about this service and the people involved, click here, or contact them directly on 020 7266 1449.

Cheyne Child Development Service (0-5) (South RBKC)

This service provides specialist assessment and healthcare therapy for children with significant developmental needs, including those who are likely to have difficulties accessing learning. For more information about their service or the people involved, click here or contact them directly on Tel: 0208 846 6488.

For more information about therapies for children with disabilities, please click the following links Occupational Therapy., Speech and Language Therapy. Physiotherapy, Paediatric Music Therapy and Special Yoga

Children with Disabilities Team (0-18 years) RBKC

Services are available to Royal Borough of Kensington and Chelsea (RBKC) residents who have a child aged 0 to 18 with a disability who is substantially affected in their everyday living by one or more of the following:

  • Global developmental delay
  • Physical impairment
  • A profound sensory impairment
  • A significantly disabling chronic ill health condition
  • Severe communication or language disorder
  • Autistic Spectrum Disorder with communication disorder and developmental delay
  • Learning disability
  • A serious life limiting or terminal illness

The team provides a full range of statutory social care services for disabled children, including child protection and looked after children in accordance with the Children’s Act 1989. The services provided are aimed towards normalising their lives and enabling them to do what other, non-disabled children can do without support:

  • St Quintin Centre for Disabled Children and Young People
  • One-to-one support at home
  • After school club and/or holiday play scheme
  • Saturday Care scheme
  • Residential short breaks
  • Direct Payment Scheme
  • The Haven
  • Transport

You can contact the Children with Disabilities Team directly. Referrals to the team can be made by young people, parents, carers and professionals. The initial way to contact them is through their duty social worker who is available on 0207 598 4921 (9am to 5pm).

Contact Details

  • Keyworkers (a service for children aged 0-7years) based at St Quintins 020 8968 2570
  • Duty Social Workers: 020 7598 4921
  • Senior Social Workers, Jowita Poniewska 020 7598 4926
  • Team Manager, Dawn Saunders 020 7598 4924

For more information about the Care Plan and social services, click here.

Full of Life Family Support Service (0-14) RBKC

Full of Life’s Family Support Service offers independent advice and information on the following:

  • Benefits, such as Disability Living Allowance and Carers Allowance.
  • Issues relating to Housing, Health and Social Services.
  • Preparation for meetings.
  • Support with complaints.
  • Liaising with various Statutory Departments who support families such as Social Services and Health.

You can contact the Full of Life Family Support Service directly on 0208 962 9994 / familysupport@fulloflifekc.com

Early Help Team (0 – 19years) RBKC

This is a multi-agency service incorporating professionals from Early Years, Family Support, School Attendance and Youth Support. The Early Help Team works with families who have children aged 0-19, where there are indications of emerging difficulties and/or additional needs and offer a range of different interventions, including;

  • Parenting work
  • Sleep advisory support
  • Activity based programmes
  • Individual advice/support
  • Family health and well-being

Contact Details
Tel: 020 7598 4608 / 020 7598 4601 or email earlyhelp@rbkc.gov.uk

St Quintins Key Worker Service (0-7years) RBKC

The Key Worker Service helps families find out about services to support a disabled child. The service provides emotional support to the family, makes appropriate referrals to other professionals, helps with benefits and other applications, liaises with other professionals and co-ordinates services.

A child under the age of six is eligible if they show a delay in more than one area of development, which could significantly affect their everyday living, and may include:

  • global developmental delay
  • a learning disability
  • a sensory impairment
  • a physical impairment
  • chronic ill health or medical problems
  • a serious life limiting or terminal illness
  • a severe communication or language disorder
  • an Autistic Spectrum disorder with associated learning disability

Referrals can be made directly by the family or professionals involved in the family.

Contact: 020 8968 2570

Locality Team (0-19) RBKC

The Locality Team offers support and access to services for children and young people with additional needs. Individuals with the following conditions will be assessed for services:

  • High functioning Autism and Aspergers
  • Emotional and behavioural difficulties that are not due to one of the areas listed above (this includes ADHD)
  • Mental health conditions
  • Dyslexia, Dyspraxia (learning difficulties as opposed to learning disabilities)
  • Speech and language delays

The services available to support a child with Aspergers, ADHD, and Mental Health

Problems and their family are as follows:

  • Locality SW service (Sign posting & Family work )
  • Local CAMHS (Behavioural support and management ADHD and Mental Health & Aspergers )
  • BFST ( Behavioural support and management Aspergers)
  • Additional support in accessing mainstream play during the holidays through the Disability inclusion fund.
  • Additional support in accessing mainstream after school provision Support in the home Direct payments Respite fostering
  • St Quintins (social skills group for Aspergers).
  • St Quintins holiday and after school provision for Aspergers children excluded from and unable to access other services.
Full of Life · A self-help group managed by parents of children with disabilities

To have an assessment, families can either self-refer or be referred by a professional. A carers assessment will also be completed if requested.

Contact: 020 7361 3013 / socialservices@rbkc.gov.uk

Occupational Therapy (Social Services 0-18years) RBKC

This service offers advice on managing the difficulties caused by physical/cognitive disabilities, equipment to help with daily living and personal care, minor home adaptations, such as grab rails and stair rails and major structural alterations to kitchens and bathrooms, stair lifts and ramps.

Equipment is provided free on a “permanent loan” basis. Some major adaptations may be funded via a Disabled Facilities Grant, for which there is a means test, and some contributions may be required.

If you need information about Occupational Therapy provided by the Department of Health, which provides help and support relating to sensory issues, motor skills, feeding, dressing and physical education, please click here.

Contact Information:

The Occupational Therapy Service can be found in two locations within RBKC:

North: Westway Information Centre, 140 Ladbroke Grove, W10.

South: Earl’s Court Neighbourhood Office, 282 Earl’s Court Road, SW5

Tel: 020 7361 3013 Email: socialservices@rbkc.gov.uk

Financial Support

If your child has been diagnosed to have a disability/additional needs you and your child could be entitled to financial support such as grants, funds and disability benefits. For more information about this please see Financial Help.

You can also contact Full of Life’s Family Support Service for advice about what financial help you are entitled to. This service also offers help filling out all related forms and applications such as Disability Living Allowance and Family Fund. Please contact us directly for more information: 0208 962 9994 / info@fulloflifkc.com

Short Breaks

Due to your child’s disability they may not be able to access mainstream short breaks (also known as play provision) without help, or they may need specialist provisions. For more information about available short breaks please click here.

You may have to apply through social services to access these services, if you need more information about this please contact Full of Life’s Family Support Service on 0208 962 9994 / familysupport@fulloflifekc.com

Children’s Centres (0-5) (RBKC/LBHF/WCC)

There are 9 Children’s centres in the borough that all offer day care to children under 5 years. The Centres are committed to providing a stimulating and fun environment for your child, while being able to cater for any of your child’s special needs.

Each centre has a designated SENCO (Special Educational Needs Coordinator) who works with all the children who have additional needs to ensure that they have an Individual Educational Plan and works with families through the Statementing process.

The centres work closely with the Child Development service, for a list of centres please Click here

Full of Life’s Independent Advice and Support Service (I.A.S.S) (0-25 RBKC)

If your child has a disability or any other special educational needs, The Independent Advice and Support Service (formally The Parent Partnership Service) can help. The service offers independent advice and information about all issues relating Special Educational Needs. The service informs parents about their rights and the rights of their child under Education Law.

 

The Independent Advice and Support Service also offers practical help and support with the following:

  • Helping parents understand the Education, Health and Social Care (EHC) planning/assessment process for Special Educational Needs.
  • Helping parents understand the Annual Review process.
  • Supporting parents to represent their views at meetings, via letters or forms.
  • Filling in forms and replying to letters if parents are unable to.
  • Requesting information on your child’s special educational needs.
  • Helping parents to understand the system for supporting your child’s special educational needs.
  • Where there are disagreements, The Independent Advice and Support Service can provide advice and help to get your views across.
  • Able to provide advice around SEN tribunals, but cannot act as a representative.

 

Contact

Independent Advice and Support Service (I.A.S.S) (0-16) - Allison Ambrogi
Full of Life,

Kensal House Annex,

379 Ladbroke Grove,

London W10 5BQ.
Tel: 0208 960 9064 / Email: sen@fulloflifekc.com

 

Carer’s Advocacy for Parents/Carers of Young People (16-25) – Samantha Peters

Tel 0208 962 9917 / Email: advocacy@fulloflifekc.com

 

Full of Life’s Independent Support Service (I.S.S)

Full of Life’s I.S.S service offers specific support for parents of children and young people who are requesting or are transferring from Statements or Learning Disability Assessments to Education, Health and Social Care Plans (E.H.C).

This service will refer to the Independent Advice and Support Service (I.A.S.S) for more complex issues in relation to Special Educational Needs.

This service is for parents of disabled children and young people (0-25) with Special Educational Needs.

For more information about this service, please contact Full of Life directly on 0208 962 9994 / info@fulloflifekc.com

Home Start

Home-Start helps families with young children deal with whatever life throws at them. They support parents as they learn to cope, improve their confidence and build better lives for their children. The benefits of their support includes improved health and wellbeing and better family relationships.

Home Start’s volunteers visit the family’s home for a couple of hours every week. They tailor-make their support to the needs of the parents and children. Volunteers are very committed and will keep visiting until the youngest child turns five or starts school, or until the parents feel they can stand on their own two feet. Parents and volunteers often develop a deeply trusting relationship which can lead to powerful change within the family.

They also run family groups and social events for families.

For more information:
Tel: 0116 258 7900
Email: info@home-start.org.uk
www.home-start.org.uk/